As you know, probably my largest passion in life is the fight to cure Parkinson’s. PD has always been a part of my life, my great grandma had it for three decades and now my grandpa has had it for seven years.
He’s been impossibly lucky — up until this last fall, he wasn’t experiencing much more than stiffness and some shuffling. Then he had an umbilical hernia… and everything else started happening. The freezing, unable to turn around… but thankfully, no real tremors or dyskinesia.
In seven years, he’s never been able to tolerate taking the synthetic dopamine that is the answer for most PD patients. He’s also never seen a PD specialist, there just aren’t any in the valley — even though we have the highest rates of PD in the country.
And then, we had a real answer to prayer — Dr. Dorsey at Johns Hopkins.
Wait, what??? We traveled across the country to see a PD specialist???
Nope 🙂 That’s the best part — Dr. Dorsey is seeing patients in a Facetime-like setting. He did an initial study where patients were surveyed and it was found their care and experience was much better than seeing a non-PD specialist in a regular office visit. That study earned him a $50,000 grant to see another 500 patients… and Poppy was one of them! And since then — Dr. Dorsey has received almost another 2 million dollars to keep up the program!!!
The downside? The law in the states limits him to only seeing patients in states where he has a medical license, and fortunately California is one of them. He can see anyone outside of the states though!
Anyway, back to Poppy & his levodopa tolerance problem — Dr. Dorsey immediately had a solution! And it’s working!!!! Poppy’s freezing indoors has almost disappeared, he’s able to turn around — it’s like night and day!
Before Dr. Dorsey, Poppy was considering not going on a free trip to see the Giants play from one of those awesome penthouse suites. He had also given up his major passion in life — fishing. Not anymore!!! He’s already planning fishing trips with Jeff this summer.
It’s making me cry with joy to think of how much his life has been renewed.
Unfortunately, Levodopa is not a cure.
There is no known cure for Parkinson’s.
Levodopa was first used for treating PD in 1967, and that’s the last time there has been a medication developed for the treatment of Parkinson’s. The only other development for treatment has been the Deep Brain Stimulation device, and that’s a last resort for many.
85% of clinical trials for Parkinson’s treatments and cures struggle to be completed because of lack of volunteers, they’re in need of both people with PD and without. You can make a difference in that by using the Fox Trial Finder to find trials to participate in — and not all are medication studies, there are simple genetic mapping ones too. If you don’t feel comfortable participating in any kind of trial, you can always make a contribution to organizations working to find the cure. Anyone can help find the cure!
I made the latest template set with Poppy in mind. It’s so important to remember the father figures in our lives, they shape who we are. With Memorial Day today, and Father’s Day coming up quickly — these templates will hopefully help you make a tribute page or two 🙂 You can grab them over in the Fan’s Only tab on the OMA Facebook page.
Once the OMA Facebook page hits 800 fans, I’ll be releasing another template set! I can’t wait, because I’m kind of really in love with the next set 🙂
Also, don’t forget the Get Real Challenge happening over at Real Life Scrapped — the Vibrant Life template set is the participation prize, and A Little Unusual is the Fan’s Only gift on their FB page!